A penny for my thoughts.....

I know I may have written about this but it's something that is on my mind. My JB and his little heart. I just wonder day to day how he is doing and what will happen. I can't imagine my life without him. Now, don't get me wrong he is doing wonderful. But, I never know from day to day what we may face. I have been reading, Before My Heart Stops, by Paul Cardall. He was born with congenital heart defect (CHD). He lived to be in his 30's and ended up getting a heart transplant. I have enjoyed his book because it has helped me and answer some of my questions about JB. Like, do we encourage him to serve a mission, go to college, get married, and as little kid; play anything he would like, do all that he can, just keep trying, don't hold him back.
I just can't believe how close JB is to his Heavenly Father and Jesus. I need to encourage him to have faith and trust in the lord that he knows what JB's mission is. But, how?
We are lucky. JB could be so much worse. Every night before I go to bed I sneak into his room and just put my hand on his heart just to make sure all is well. I love feeling it pump and work. It makes me know he is going strong. I can't ask him too much about his heart because he likes to cry wolf with it. He complains about his heart or his pacemaker hurting. I get all worried but then he starts playing and wrestling and is fine. I have tried to tell him he can't use it as a crutch. I don't want him to. That isn't what it is for. He needs to learn that it's not something to lie about.
But I guess what I am writing is how long, how much time, does my little guy have? will he be here forever and I don't have to worry about it. I know, I know, that i have him for the eternities but what about now?