You might want to grab a tissue

Oh how my heart is full today.... I have been crying, praying and so full of gratefulness. We belong to a heart family. The Intermountain Healing Hearts. It's such a great group. We have been reserved about participating in their activities. For a numerous reasons.....
1. JB is doing so good that I hate going and seeing the other little kids struggling or hearing about all those that are waiting for miracles.
2. We are older as in JB is older than those that are there. He has made a amazing friend this past summer. He is a little boy that is a brother to a Heart Hero.

So I think I am going to start going more. I need the mother support. The Heart Moms have a group on FB and we are support to each other. They are great friends because we can relate to each other.
This week has been a struggle for us all.
A cute little 4 year old girl passed away yesterday thousand of miles away from home but surrounded by her family.  I don't know all the details about her story but what I have read she is amazing. Mia, had a heart transplant when she was 4 months old. She has done wonderful for these 4 years. She had her Make A Wish granted this year. Her dream was to meet Minnie and Micky Mouse. Her and her family flew out  to Florida to go to Disney World. She didn't make it..... She ended up in the Micky Mouse pavilion at the hospital. They thought she had pneumonia. The found out she was in full heart rejection. They were trying to do a biopsy and something went terribly wrong. She was put on life support and the bypass machine.
Her family was forced to say good bye yesterday. She had no brain function and they knew she couldn't get better for another heart. She was suppose to meet the mommy of the little boy whose heart kept her alive these 4 years. I know that the lord had her here for this short time for her family and to touch other peoples lives. 
I don't know how some of these mothers do it. I was thinking though..... I know these heart transplant  moms worry about rejection everyday. I worry alot also. JB is being kept alive on a pacemaker. His little heart depends on that. If it stops, gets broken, or it gets hit hard enough he could just drop. I could loose him. I could loose my little guy. He is my life. I don't want to waste any more minutes. I want to surround him with every experience that is available. He deserves to have a wonderful life. I don't want to be a " mean mom". I also need to do this with my little girls. Stop taking things, life, and family for granted. Oh JB, I hope you know how many lives you have touched. You amaze me everyday. I will try to be a better mom and not tell you just a minute anymore. I thank my heavenly father daily for you and that I have had you for so long. I hope to have you here on earth for another 30 years. I LOVE YOU !!!! You are my HEART HERO!!!!!
Here is a little movie  about Mia. Like I said you will need a tissue.

For Jessica

vimeo.com
I love the music I need to find it..
Thanks for listening to me. I needed to let it all out.